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This information has been produced to help you understand everything you need to know about the way Associação Advanced Breast Cancer Global Alliance collects, uses, and shares personal data, what your legal rights are and how to exercise them. We hope you’ll take some time to read this document; we’ve tried to keep it all as simple as possible and to avoid jargon, and we’ll make our best efforts to keep you informed if there are any changes to the way we process your personal data in the future. Associação Advanced Breast Cancer Global Alliance takes its responsibility for protecting your data very seriously and we do advise you get to know our practices. If there’s anything here you don’t understand, or if you want to ask any questions, please feel free to contact us.
Who is the Data Controller?
We are AssociaçãoAdvanced Breast Cancer Global Alliance. Registered address: Champalimaud Foundation, Avenida Brasília,1400-038, Lisbon, Portugal. In this document Associação Advanced Breast Cancer Global Alliance may be referred to as “we”, “us”, or “our”.
What kinds of Personal Data does Associação Advanced Breast Cancer Global Alliance Process?
Associação Advanced Breast Cancer Global Alliance collects personal data for various purposes; with that in mind we have created a list of the types of personal data that we may collect, either directly from yourself or from other sources, in order to achieve those purposes. The kinds of personal data we may collect include:
Associate members -> Name, Surname, Institution, Address, and email address, IP address, job title, telephone numbers, gender.
Associate observers -> Name, Surname, Institution, Address, and email address, IP address, job title, telephone numbers, gender.
Board members, President and Secretary General to GA -> Name, Surname, Institution, Address, and email address, IP address, job title, telephone numbers, DOB, Health history of one board member, Nationality, Tax number and country of issuance of such number: Identification card number and country of issuance, passport number and details.
Customer / Client -> Name, Surname, Institution, Address, and email address, IP address, job title, telephone numbers, gender, medical specialisation, medical specialty and field of expertise, education and work experience, Bank details.
Supplier / Trader -> Contact details, Bank details.
Sub-Contractor -> Contact details, Bank details.
Legal Obligations
Associação Advanced Breast CancerGlobal Alliance uses personal data firstly to fulfil any contractual obligations that exist between us and yourself. Where we request personal data be provided to enter into, or meet the terms of any such contract, you will be required to provide the relevant personal data or we will not be able to deliver the goods or services you want. In such cases, the lawful basis of us processing the personal data is that it is necessary for the performance of a contract.
We are required by law to process personal data for purposes relating to our legal obligations, these include:
- To provide for our financial commitments, or to relevant financial authorities.
- To comply with regulatory requirements and any self-regulatory schemes.
- To carry out required business operations and due diligence.
- To cooperate with relevant authorities for reporting criminal activity, or to detect and prevent fraud.
- To investigate any insurance claims, claims of any kind of harassment or of discrimination, or any other claim whereby the organisation may have to defend itself.
Consent
Associação Advanced Breast Cancer Global Alliance may process Personal Data for the following purposes where it has received consent to do so:
To inform you of goods and services provided by third-party organisations.
You may withdraw your consent for us to process your personal data for these purposes at any time; after a withdrawal of consent request is received, we may have to contact you to verify the request.
Withdrawing your consent for us to process your personal data will not affect the lawfulness of the processing beforehand. If you are under the age of 13, you must have permission from your parents or guardians to use our online services. This is called ‘parental consent’. If we find out that any person under the age of 13 is using our services without the proper parental consent, we may have to stop that service; this might include deleting your accounts and any data that you have added to them.
Legitimate Interests
Associação Advanced Breast Cancer Global Alliance may process Personal Data for any of the following purposes, which are considered to be within our legitimate business interests:
- To provide goods and services where it has been requested,
- To inform people of goods and services we provide or offers that may interest them,
- To send notification on subjects to individuals who have asked to be kept informed,
- To invite people to participate in research in fields and disciplines they are interested in,
- To improve the quality of the services we offer, and to better understand customers’ needs by requesting feedback, or reviews of the services provided, or sending survey forms,
- To send notifications of any changes to the goods and/or services provided that may affect people,
- To understand the scale of the customer base; for statistical analysis and market research,
- To recognise when people re-engage with our organisation,
- To facilitate the completion of research initiatives,
- To provide reference information to third party organisations when necessary,
- To improve the organisations website so content is delivered more efficiently,
- To enhance the security measures in place that protect data we are responsible for.
Special Category Personal Data
Associação Advanced Breast Cancer Global Alliance may intend to process the following kinds of Special Categories of Personal Data: Data concerning health information.
Where Special Categories of Personal Data are processed, one or more of the following lawful basis shall apply:
Associação Advanced Breast Cancer Global Alliance has received explicit consent.
We will collect personal data directly from you in various ways. This could include when you complete an online form, or if you provide the data directly to a representative of Associação Advanced BreastCancer Global Alliance. We may also gather personal data by any of the following methods:
- From technical functionality that gathers data automatically from computer equipment when people visit our online platforms.
- From platforms that make use of device settings that allow geographical location tracking, such as IP Address mapping, WiFi, GPS signals and cell tower positioning.
- From third-party organisations provided for a specific purpose.
To achieve the above-stated purposes for which we process your personal data, we may have to share your personal data with certain third parties. We shall make all reasonable efforts to ensure that any third-party we share your personal data with is also compliant with data protection law.
The kinds of third parties we may share your personal data with include:
- Organisation where it is necessary to provide goods or services.
- Organisations where it is necessary to set up various resources.
As a part of our standard business practices, we may transfer your personal data to organisations based in countries that have not been granted an adequacy decision under the General Data Protection Regulation.
Where data is transferred to such countries, we shall ensure that specific safeguards or derogations have been established. These might include where the data transfer is necessary in order to fulfil a contract between us and yourself, where we have received your specific consent after having made you aware of any risks involved, or where contracts are in place between us and the third-parties involved that ensure the recipient organisation has a suitable standard of data protection in place.
We will keep your personal data only for as long as required to achieve the purposes for which it was collected, in line with this privacy notice.
The following criteria are what determine the period for which we will keep your personal data:
- Until we are no longer required to do so to comply with regulatory requirements or financial obligations.
- Until we are no longer required to do so by any law we are subject to.
- Until all purposes for which the data was originally gathered have become irrelevant or obsolete.
There are several rights granted to you immediately upon providing us with your personal information; some of these are mentioned above. We’d like you to know that at Associação AdvancedBreast Cancer Global Alliance we take your rights seriously and will always conduct ourselves in a way that is considerate of our responsibility to serve your legal rights.
• The Right of Access
This grants you the right to confirm whether or not your personal data is being processed, and to be provided with relevant details of what those processing operations are and what personal data of yours is being processed. If you would like access to the personal data we have about you, we ask that you contact us using the details below.
• The Right to Rectification
If you notice that the data we have about you is inaccurate or incomplete, you may request we rectify the mistake. We will make every effort to respond to requests of this type immediately.
• The Right to Erasure
Otherwise known as the ‘right to be forgotten’, this given you the right to request your personal data be deleted. This is not an absolute right; if you were to request that we erase your personal data, we would erase as much of that data as we could but may have to retain some information if it is necessary. Were we have received a request for personal data to be erased, if it is necessary for us to retain some of that information we shall ensure that the remaining data is used only when and where it is absolutely necessary.
• The right to objection
If you wish to object to the way we use, or have used, your personal data you may do so freely.
• The right to complain
We will always try to maintain the highest standards and encourage the confidence our members have in us as an organisation. To achieve this, we request that any complaints be first brought to our attention so we can properly investigate matters. If you would like to complain about Associação Advanced Breast Cancer Global Alliance to a regulatory body, you may do so by contacting your local data protection supervisory authority.
Associação Advanced Breast Cancer Global Alliance
Champalimaud Foundation,
Avenida Brasília,1400-038, Lisbon, Portugal.
+351938 027 790
info@abcglobalalliance.org
ABC Global Alliance has appointed a Data Protection Officer:
Ametros Group Ltd,
Lakeside Offices, Thorn Business Park
Rotherwas Industrial Estate, Hereford, Herefordshire, England, HR2 6JT
0330 223 2246
dpo@ametrosgroup.com
www.ametrosgroup.com
Who is the AssociaçãoAdvanced Breast Cancer Global Alliance UK Representative?
Ametros Group LtdLakeside Offices, Thorn Business Park Rotherwas Industrial Estate
Hereford, Herefordshire, England, HR2 6JT
gdpr@ametrosgroup.com
www.ametrosgroup.com
This Privacy Policy may be amended occasionally to reflect changes in the law or in our data processing practices, the issuance of new guidelines from the local data protection authority, or advances in technology. We will give you appropriate notice of any changes to this Policy and will provide you the opportunity to explicitly assent to any changes prior to being subject to the same.
You can know if the Privacy Policy has changed since the last time you reviewed it by checking the “Effective Date” included at the bottom of the document. We encourage you to periodically review this Policy to stay informed about how we collect, use and disclose your Personal Data, in case you missed our notice of changes to this Privacy Policy.
If you have any questions regarding the processing of your personal data, or wish to exercise any of your rights, please contact us at info@abcglobalalliance.org
Last updated: 19December 2023
We at ABC Global Alliance are strongly committed to transparency and take the protection of your privacy and personal data seriously. Therefore, this Privacy Policy explains who we are, for what purposes we may use your data, how we process it, with whom we share it, for how long we keep it, as well as the ways for you to manage your personal data and exercise your rights.