The spirit of collaboration of the ABC Global Alliance is reflected also in its governance structure. The governing bodies are:
The President or Chair of the Board of Directors is elected by the General Assembly.
Champalimaud Clinical Center, Lisbon, PT
Dr. Fatima Cardoso is a Medical Oncologist and Director of the Breast Unit of the Champalimaud Clinical Centre in Lisbon, Portugal. She is the President of the ABC Global Alliance and the Chair of the ABC International Consensus Conference and Guidelines. She is actively involved in numerous professional organizations such as ESMO, ASCO, AACR, EACR, EORTC, IBCSG. She is the Editor-in-Chief of The Breast Journal, Associate Editor of the European Journal of Cancer and an Editorial Board Member of several other journals. She has authored over 300 publications and has presented her work nationally and internationally.
BOARD OF DIRECTORS
The Board of Directors consists of 7 members (including the President) and is elected by the General Assembly.
Hôpital Riviera-Chablais, Vaud-Valais, CH
Dr. Alexandru Eniu is a senior medical oncologist at the Hôpital Riviera-Chablais, Vaud-Valais, Switzerland, where he took a position in January 2020 as Breast Unit Responsible and Disease Lead for Breast Cancer. He previously worked in Cluj-Napoca, Romania.
He was appointed in 2018 Deputy Scientific Director of the European School of Oncology.Within ESMO, he chaired the ESMO Global Policy Committee and, between 2014-2018, he was a member of the ESMO Executive Board, leading several initiatives tackling disparities in cancer outcomes across Europe and the world. Within ASCO, he served as chairman of the ASCO International Affairs Committee. He participated in the process of developing international and national guidelines for the management of cancer patients, serving as the Co-Chair of the Treatment and Allocation of resources Panel of the Breast Health Global Initiative and as panel member of the Advanced Breast Cancer (ABC3 and ABC4) International Consensus Conference. He wrote 6 book chapters and more than 80 articles in international peer reviewed journals within his specialty breast cancer.
Pfizer Inc., New York, US
Patti Jewell is Senior Director, Public Affairs for Oncology in Pfizer’s Corporate Affairs Division. Patti leads Pfizer’s strategic engagements on global and US cancer policy and public affairs matters, focusing on breast cancer related issues as well as a portfolio of pan-tumor topics. Prior to this role, Patti worked in Alliance Development, State Government Relations and Grassroots Advocacy for Pfizer, and was a Legislative Assistant to a United States Senator before joining Pfizer. She received her Masters in Public Administration from New York University and bachelors degree in Political Science from the University of Michigan.
Breast Cancer Welfare Association Malaysia (BCWA), Petaling Jaya, MY
Ms Ranjit Kaur, a breast cancer survivor since 1998, and Patient Advocate, is the President of Breast Cancer Welfare Association Malaysia and Chairman of Together Against Cancer Association Malaysia. She is also a Board Member of Reach to Recovery International. Ranjit held the position of President of Reach to Recovery International (2003-2007), and Board Member of the Union for International Cancer Control (UICC) (2006-2010). She regularly gets invited to speak and participate in cancer control conferences locally and internationally.
SHIRLEY A. MERTZ
MBC Alliance, New York, US
Throughout career, Shirley Mertz served her community as a teacher and high school principal to help teenagers realize their potential. Before retirement, Shirley received a diagnosis of metastatic breast cancer. Since 2004, she has used her voice, passion and skills to help patients understand how to find the right care team and get the right tests to achieve the best outcomes.
Believing awareness about metastatic breast cancer was lacking in October, Shirley reached out in 2009 to the US Congress, seeking a resolution to designate October 13th as National MBC Awareness Day. The resolution passed unanimously.
Currently, Shirley works to empower patients and improve disease outcomes as Chair of the Metastatic Breast Cancer Alliance; President of the Metastatic Breast Cancer Network; patient advocate to the Translational Breast Cancer Consortium and the AURORA USA clinical study; and most recently, Co-Chair of the Scientific Committee for the ABC5
Conference in Lisbon. Shirley often speaks at conferences about the challenges and needs of patients. Among her numerous awards, Shirley was honored by the Obama White House as a Champion of Change in Breast Cancer.
Breast Cancer Network Australia, Camberwell, AU
Kirsten has an exceptional understanding of the cancer sector having spent over a decade at BCNA and five years at Cancer Council Victoria where she was responsible for delivering communications and campaigns around prevention messages.
Kirsten has a deep connection to Australians affected by breast cancer after spending 18 months travelling around Australia interviewing more than 3,500 women and men about their experience of breast cancer treatment and services to find out where the gaps in service delivery are occurring. The findings were outlined in the State of the Nation report, which was delivered to Federal Parliament in June 2018.
Breast Cancer Network Australia (ABC patient representative), AU
Dr Andrea Smith is a cancer and health services researcher with a background in public health, publishing, and molecular biology. She was diagnosed with de novo metastatic breast in 2016 and since then has become increasingly involved in research and advocacy in relation to the supportive care needs of those with metastatic breast cancer in Australia. She is the Chair of Breast Cancer Network Australia’s Metastatic Breast Cancer Advisory Group. In 2021 she became a Daffodil Fellow at The Daffodil Centre, The University of Sydney, a joint venture with Cancer Council New South Wales. Her work focuses on the supportive care needs of people diagnosed with metastatic breast cancer.
European Oncology Nursing Society, London, UK
Professor Theresa Wiseman holds a joint clinical chair of applied health research in cancer care between The Royal Marsden NHS Foundation Trust and the University of Southampton. Nationally she is a member of the UK Department of Health/Macmillan funded Consequence of Cancer and Treatment Collaborative (CCAT). Theresa is an Executive Board Member (secretary) of the European Oncology Nursing Society (EONS) and a member of the EONS Research Advisory Group. She is an international member of Faculty of the Australian and New Zealand Urology Research Group (ANZUP). She is an international invited speaker, has published widely and presented her work nationally and internationally. She is passionate about applied health research but more so that the findings are translated into practice and make a difference to patient care. All her studies to date have been translated to practice.
The General Assembly is a body made up of one representative of each Associate Member and is directed by the its Board, composed of a President and a Secretary (more information).
RENATE HAIDINGER (President)
Brustkrebs Deutschland e.V. (German Breast Cancer Association), Munich, DE
Medical Journalist (since 1977), Founder and President of the German Breast Cancer Association – Brustkrebs Deutschland e.V.
Being a breast cancer survivor since 2000 Renate specialized on breast cancer, now doing video interviews with experts at all relevant conferences moderating discussions, giving presentations for patients, on side effect management, drug interactions, HTA and more. Since 2007 one main focus of her work has been metastatic breast cancer. She is member of the “IDMC” of a big German study group (since 2004) and co-author of national and international publications. She is faculty member and panel member of the ABC5 Conference, President of the General Assembly of the ABC Global Alliance, member of the Expert Working Group for the Policy Road Map for mBC, member of the Patient Adboard for Clinical Trials of the Cancer Research Centre in Heidelberg and at the Eusopean Commission member of the IMI (innovative medicines initiative) pool of patient experts.
In 2012 Mrs. Haidinger received the Federal Cross of Merit from the German President, Joachim Gauck.
BERTHA AGUILAR (Secretary)
MILC Foundation, Mexico City, MX
Bertha Aguilar was born and raised in Mexico City. She graduated from the Universidad Iberoamericana (IBERO) with a degree in Industrial Relations, and began her professional career working as a training manager at companies such as Xerox, Grupo Peñoles and Estee Lauder Companies.
With exercise being a fundamental part of her life, she was able to detect an irregular lump on her breast after swimming that was diagnosed as breast cancer. Being a young mother of Santiago and Renata, at age 31, Bertha´s life took a dramatic turn as she faced a radical mastectomy and received over a year of chemotherapy.
For the past 2 decades she has helped create awareness among society about the importance of early detection, helping patients navigate the health system and advocating for access to the right treatment.
Since 2010 she has being focusing on metastatic breast cancer and has attended several ABC conferences where she participated both as a faculty and panel member, as well as holding the position of Secretary of the General Assembly of the ABC Global Alliance (2020).
Currently, Bertha is collaborating with MILC Foundation as a Patient Advocate (milc.org.mx), and is also a commissioner of the “Lancet Commission on Diagnosis: Advancing equitable access to diagnosis.”
Never the less, among other participations, she has given a Ted Talk at the UICC Summit in Paris, “Private –Public model for training health promoters in rural communities”’, and was appointed by American Cancer Society as Ambassador of México regarding issues of non-transmitted chronic diseases during the high level meeting of the United Nations in New York.
SOLE AUDITOR AND ALTERNATE
The sole auditor and the alternate are appointed by the General Assembly and must be either a certified public accountant or a certified public accountant company.
For more information on the association governance please refer to the statute.