HARD-TO-REACH ABC/mBC COMMUNITIES TOOLKIT

HARD-TO-REACH ABC/mBC COMMUNITIES TOOLKIT

To address the critical unmet need in access to care for hard-to-reach populations with advanced/ metastatic breast cancer (ABC/mBC), the ABC Global Alliance and Pfizer have collaborated to develop a toolkit of relevant, community-based initiatives and best practice summary documents that aims to drive collaboration across the global ABC/mBC community.

The Initiative Repository contains information on all initiatives included in the toolkit and allows users to filter and sort by different criteria to find those that are most relevant. One-page summaries of each initiative can be accessed directly from the repository. Click below to access the repository.

Initiative Repository

Submit an initiative

Initiatives are grouped into four categories, with each containing one-page summaries of every initiative included in the category, as well as a best practice document that incorporates learnings from all the initiatives in the category. The best practices outlined in these documents have been collated through a combination of written submissions and interviews with the creators of these initiatives.

Educating Patients & HCPs About ABC/mBC

Support for Patients with ABC/mBC

Peer-to-Peer Support Groups or Platforms for Patients with ABC/mBC

Raising Awareness & Promoting Earlier Diagnosis

 

EDUCATING PATIENTS & HCPs ABOUT ABC/mBC top

Best practice in Educating Patients & HCPs About ABC/mBC

hilfe fur mich

Help For Me - Patient Navigator
Pfizer Germany

In Germany, patients often lack the ability to navigate the complex healthcare system. This initiative supports patients with ABC/mBC and caregivers in navigating through the healthcare system thanks to a co-created, digital support solution which aims to ensure equity and access to health services. The website has since been expanded to include 9 other indications. | MORE INFORMATION

ORCI - ICR - BCI - The RoyaMarsden

Unmet Need and Living with and Beyond Cancer in Africa
Various Institutions

In Ghana and Tanzania there are a lack of support services for people living with and beyond BC. This initiative was developed to assess the unmet needs of women following primary BC treatment, and determine the feasibility of implementing a recovery package (holistic needs assessment, care plan and treatment summary) for these patients. | MORE INFORMATION

Europa donna

Europa Donna Breast Health
Europa Donna Turkey and Pfizer Turkey

Patients with ABC/mBC in Turkey lack access to validated medical content and social interaction with other patients. Following the success of the Let Hopes Blossom Initiative, Europa Donna and Pfizer Turkey collaborated again to create this Instagram page for patients with ABC/mBC, offering both medical content and opportunity to engage with other patients. | MORE INFORMATION

milc

Metastatic Care: Educational Component
MILC – Médicos e Investigadores en la Lucha contra el Cáncer de Mama

Following the roll out of previous MILC initiatives, it was identified that many specific needs of patients with ABC/mBC were not being met. This standardised psychoeducational intervention was developed to assess and improve patient understanding of their disease, allowing them to actively participate in decision-making processes and ultimately improve QoL. | MORE INFORMATION

jhpiego

Demonstration of a Scalable Breast Health Care Pathway: Experience from Botswana
Jhpiego and Collaborators

It is estimated that 70% of BC cases are diagnosed late in Botswana and there are often delays to diagnosis and treatment. This initiative provides education on breast awareness and examination, as well as improving the patient journey from community to treatment by identifying delays, reducing the time at each stage, and improving quality of services. | MORE INFORMATION

ORCI - OCR - The Royal Marsden - BCI - MacMillan

Foundations of Cancer Care
Various Institutions

Opportunities for cancer nursing education in Africa are limited and in Ghana and Tanzania there is a lack of specialist cancer care and knowledge among nurses. This one-year initiative aimed to identify current levels of competence and then develop a culturally sensitive training programme for nurses in practice and peer support advocates delivering cancer care. | MORE INFORMATION

Southampton-NHS-Guys-Thomas

Factors Influencing Treatment Decision Making in West African Women Diagnosed with BC Living in London
Guys and St Thomas NHS Foundation Trust and University of Southampton

Young black women in the UK have significantly poorer BC outcomes compared with average and there is a lack of understanding of the factors influencing decision making in West African women living in the UK. This ethnographic study was conducted to enable HCPs to better understand these women’s beliefs & behaviours and adjust their own approach accordingly. | MORE INFORMATION

unth

Patient Navigation Program
University of Nigeria Teaching Hospital Cancer Support Group

Low numbers of oncologists in Nigeria means that consultations are often rushed and patients are left not fully understanding their diagnosis and treatment options, and with emotional and psychological challenges. This initiative established a patient navigation protocol for HCPs and a unit in the UNTH oncology centre providing support and education for cancer patients. | MORE INFORMATION

 

SUPPORT FOR PATIENTS WITH ABC/mBC top

Best practice in Support for Patients with ABC/mBC

alma-zois

Mobile App: My Alma
Hellenic Association of Women with Breast Cancer "ALMA ZOIS"

In Greece there is a lack of support specifically tailored to the needs of patients with ABC/mBC, meaning patients often feel isolated and ashamed. The My Alma app was developed to support patients with ABC/mBC in an easily accessible, friendly, hopeful and realistic manner, bridging the gap between support services and these patients and ultimately improving QoL. | MORE INFORMATION

Europa-Donna-TTOD-Pfizer

Let the Hopes Blossom
Europa Donna Turkey, Turkish Medical Oncology Association (TTOD) and Pfizer Turkey

Despite evidence suggesting QoL is a crucial factor impacting prognosis, in Turkey there is a lack of psychosocial support for patients with ABC/mBC. This multi-organisation collaborative initiative was developed to provide psychological support for patients with ABC/mBC, as well as raising awareness about the importance of psychological support for these patients. | MORE INFORMATION

My Choice

My Choice Navi
Pfizer Japan Oncology BC team

Patients with ABC/mBC in Japan are often poorly educated on their disease and lack support throughout their treatment. The MY CHOICE Navi account was developed on the Japanese social networking app, LINE, to provide patients with easy access to relevant information on ABC/mBC, as well as supporting treatment continuation via a hospital visit tracker. | MORE INFORMATION

Clinique Medicale Camassistance Yaounde Cameroon

Palliative Care and Home Visit for Rural Cameroonian Patients with ABC
Clinique Medicale Camassistance Yaounde Cameroon

In rural areas of Cameroon, 90% of patients with ABC/mBC live without treatment and breast cancer is often discovered at a very advanced stage due to lack of awareness. This initiative organises home visits and psychosocial support for patients with ABC/mBC, as well as training for traditional healers, HCPs and members of the community in breast health. | MORE INFORMATION

Sweet Louise

Support for Those Living with Incurable BC
Louise Perkins Foundation t/a Sweet Louise

There is a lack of support for patients with ABC/mBC in New Zealand and life expectancy is low for these patients. This initiative offers a holistic programme of social, psychological, emotional, practical and financial support to enable patients with ABC/mBC to live as well and as long as possible. | MORE INFORMATION

winter mission

Winter Mission
The AEGEAN Group, Supported by Women for Oncology

Women living in isolated and remote Greek islands encounter social and economic barriers that prevent them assessing breast cancer prevention services. This initiative brings these services to the remote locations, as well as offering medical services and informative lectures specifically for patients living with ABC/mBC. | MORE INFORMATION

alola foundation

Reusable Wound Kits for Malignant Fungating Breast Wounds (MFBW)
Volunteer Nurses and BC Welfare Association Malaysia for Haliku Foundation (Alola)

Women with malignant fungating breast wounds (MFBW) experience limited healthcare support in Timor Leste. This initiative saw a team of Australian volunteer nurses travel to Timor Leste to provide patients with reusable wound care kits, as well as educational support to allow women to self-manage MFBW, maintaining their dignity and subsequently improving QoL. | MORE INFORMATION

Oncovia

Meeting Patients Needs to Improve Physical Self-image and Psychological Wellbeing
Integrated PAI Oncology Hospital (Spitali i integruar PAI Onkologjik)

Patients receiving treatment for BC in Albania lack access to resources such as silicone prostheses and wigs, which negatively impacts the quality of life of these patients. This initiative aims to improve the self-image and psychological wellbeing of patients with BC through the provision of both wigs and silicone prosthesis. | MORE INFORMATION

 

PEER-TO-PEER SUPPORT GROUPS OR PLATFORMS FOR PATIENTS WITH ABC/mBC top

Best practice in Peer-to-Peer Support Groups or Platforms for Patients with ABC/mBC

pfizer

Through My Eyes Facebook Page
Pfizer Emerging Markets

While there is a lot of information on breast cancer in Asia, there is a lack of specific information and support for patients with ABC/mBC. This Facebook page provides a community specifically for patients with ABC/mBC, including reliable, specific information on their disease, sharing of patient stories, and links to patient organisations with relevant content. | MORE INFORMATION

BCI

The HOPE (Helping Others through Personal Experience) Project
Breast Care International

In Ghana there is a lack of counselling available for patients with ABC/mBC and patients are often led to believe that it is not possible to maintain QoL while living with ABC/mBC. This initiative trains patients to become peer-to-peer counsellors, to help demystify BC and provide advice to patients with newly diagnosed BC or ABC/mBC. | MORE INFORMATION

borstkanker vereniging

Discussion groups for people with ABC/mBC
Dutch Breast Cancer Association (BVN)

Patients with ABC/mBC in the Netherlands have limited access to psychological support and there is a lack of willingness to mix with patients with BC. This initiative organises accessible, monthly discussion groups specifically for patients with ABC/mBC, led by trained cancer coaches, allowing patients to connect, learn from each other and ultimately improve their QoL. | MORE INFORMATION

LBCF

Patient Empowerment Workshop – We are Connected
The Lebanese Breast Cancer Foundation

Patients with ABC/mBC in the Netherlands have limited access to psychological support and there is a lack of willingness to mix with In Lebanon, support for women with ABC/mBC is unequal to that for with patients with eBC. This annual workshop was created to integrate ABC/mBC into awareness efforts for BC, and to connect, empower and inspire patients with ABC/mBC through educational sessions from specialists in nutrition, sexology, psychology, oncology, meditation and beauty. | MORE INFORMATION

uwocaso

Malaika (Angel Program)
Uganda Women’s Cancer support Organisation (UWOCASO)

In Uganda there is limited psychosocial support for patients with ABC/mBC and patients often struggle financially and with nutrition. This initiative trains patients with ABC/mBC and their families on ways of improving their nutrition and income, as well as providing access to psychosocial support services and community palliative care. | MORE INFORMATION

RAISING AWARENESS & PROMOTING EARLY DIAGNOSIS top

Best practice in Raising Awareness & Promoting Earlier Diagnosis

acbd

ABC INFOGRAPHICS
After Breast Cancer Diagnosis

Following breast cancer diagnosis, many patients are unaware of advanced/metastatic disease and the symptoms to look out for. This initiative comprises two infographics showing simple-to-understand, red-flag symptoms for both ductal and lobular ABC/mBC, and is intended for use with patients and as an educational tool for HCP training. | MORE INFORMATION

thrive

Care-A-Van Breast Cancer Project
Pfizer Malaysia

In Malaysia, there are multiple barriers to early diagnosis and treatment of BC, and outreach projects often work in silos and are restricted to big cities. This collaborative, multi-organisation initiative aims to increase early BC diagnosis in urban poor communities, as well as provide information, support and care specifically for patients with ABC/mBC. | MORE INFORMATION

cima

The “Cima Model”, Understanding, Training and Acting: An Experiential Practice Towards Early Cancer Detection
Mexican Association Against Breast Cancer (Cima Foundation)

People living in marginalised areas of Mexico are often diagnosed with late-stage breast cancer due to limited information on the risks of BC and early detection methods. This initiative aims to train a network of health promoters to raise awareness of BC and lower the number of diagnoses at advanced/metastatic stage, as well as improving QoL for those diagnosed. | MORE INFORMATION

BCI

Community Outreach Programme
Breast Care International (BCI) and Peace and Love Hospitals

Women in Ghana, especially those in villages and deprived communities, have low awareness of BC and often do not have easy access to early detection methods. This initiative aims to reduce the rate of late-stage BC diagnosis by travelling to these communities to offer education, breast examination, advice and support (including for patients with ABC/mBC). | MORE INFORMATION

IHI

Community-Based Women's Cancer Awareness
Innovating Health International (IHI)

Communities in Haiti have low awareness of BC and often do not engage with cancer care services until the disease is at a very advanced stage. This research-led initiative aims to raise BC awareness through a multimedia campaign, designed in Creole, including pamphlets, videos, t-shirts, and wallets for the public and a training manual for HCPs. | MORE INFORMATION

The male breast cancer coalition

Male Breast Cancer Coalition
Male Breast Cancer Coalition

Globally, there is low awareness and stigma around male BC and male mortality rates are rising steadily. This organisation advocates to change the BC conversation and provide men with the same access to research, clinical trials and drugs as their female counterparts. As part of their work they have developed breast self exam cards specifically for males. | MORE INFORMATION

me-trate-direito-femema

Treat Me Well
Brazilian Federation of Philanthropic Institutions to Support Breast Health (FEMAMA)

Patients with BC in Brazil often face delays in diagnosis and starting treatment, and are unaware of their rights to care. The annual awareness campaign during ‘Pink October’ has been created by FEMAMA with the aim to change public policy – empowering patients, informing them on their rights and the possibilities of better access to care in Brazil. | MORE INFORMATION

The Hard-to-Reach ABC/mBC Communities Toolkit was developed as a collaboration between Pfizer Oncology and the ABC Global Alliance, with funding and support provided by Pfizer. ABC Global Alliance members and Pfizer colleagues were invited to submit breast cancer community-based initiatives that address specific needs of underserved patient populations with advanced/metastatic breast cancer. Initiatives were evaluated against criteria determined by a steering committee with members from both Pfizer and the ABC Global Alliance. Initiatives were selected for inclusion in the toolkit to highlight best practices in addressing the unique needs of this patient population. All organizations who submitted their initiatives for consideration have provided permission for the initiative information to be included in the toolkit and shared publicly. Pfizer and the ABC Global Alliance bear no responsibility for the third-party initiatives described within the toolkit.
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