Resources

Resources

Explore our resources developed for HCPs, patient advocacy groups, patients, caregivers, and friends & family of people living with advanced breast cancer
mBC Decade Report
Honestly Spoken
Hard-to-Reach Toolkit
Partner Campaigns
Covid-19 & Cancer
Additional Resources

A 10 year Review of Advanced Breast Cancer

To shed light on the challenges and gaps in advanced breast cancer and inspire worldwide change within the breast cancer community, ESO worked collaboratively with Pfizer Oncology to provide the Global Status of Advanced / Metastatic Breast Cancer (MBC) 2005-2015 Decade Report. The report reveals areas of improvement as well as substantial gaps in care, access to resources and support, and treatment outcomes for patients with advanced breast cancer.

A steering committee of global multidisciplinary advanced breast cancer advisors, comprising physicians, leaders of patient-support organizations, and patients, contributed to the development of the report.

In collaboration with ESO, Pfizer provided project management support and strategic coordination, as well as shared analyses and key data on gaps in care identified in the Global Status of MBC Decade Report, which formed the basis of the MBCVision 2025 Call-to-Action.

Pfizer did not develop content for the Call-to-Action, this was determined by consensus from MBC Vision 2025 Taskforce members.

honestly spoken

The ABC Global Alliance has partnered with Sanofi to raise awareness of the burden and unmet needs of people living with metastatic breast cancer (MBC) through powerful storytelling, tangible advice and real-world examples. Honestly Spoken focusses on giving voice to the issues that matter most to MBC patients and caregivers through real, unscripted conversations led by patients, caregivers, healthcare professionals and experts from around the world. No topic, issue or personal experience is off limits as we seek to focus on the unique needs and priorities for the MBC Community. Join the conversation and watch the latest Honestly Spoken discussions.

Caring for Our Caregivers

One aspect of MBC care that often goes overlooked is the health and wellbeing of the caregiver. Many times, this person who is either a friend or a family member is asked to take on another full-time job, often at the expense of their own health. Our first Honestly Spoken discussion, “Caring for Our Caregivers,” moderated by ABC Global Alliance President Dr. Fatima Cardoso, features the perspective and tips from caregivers Linda and Sarah-jane, patient advocate Nicole and Dr. Luzia Travado, an expert in psycho-oncology.

Maximizing Communication with Your Doctor

Listen as a person living with MBC, Jo and an oncologist, Dr Paluch Shimon, describe how to best collaborate together and how someone can become empowered as their own health advocate.

Demystifying Terminology

The terms that healthcare professionals use when they present the diagnosis of metastatic breast cancer to the patients can sometimes be confusing. Listen to the discussion, moderated by ABC Global Alliance President Dr Fatima Cardoso, which features the perspective and tips from Dr Hope Rugo, breast medical oncologist, patient advocate Renate Haidinger and Eva Schumacher-Wulf, metastatic breast cancer patient.

Clinical Trials

What exactly is a clinical trial and why is it important to participate? Watch this episode of the Honestly Spoken initiative to clarify some of the questions and myths about clinical trials together with Dr Fatima Cardoso, ABC Global Alliance President and Director of the Breast Unit of the Champalimaud Clinical Center in Lisbon, and Eva Schumacher-Wulf, metastatic breast cancer patient and founder of the magazine Mamma Mia.

hard-to-reach abc/mbc communities toolkit

To address the critical unmet need in access to care for hard-to-reach populations with advanced/ metastatic breast cancer (ABC/MBC), the ABC Global Alliance and Pfizer have collaborated to develop a toolkit of relevant, community-based initiatives and best practice summary documents that aims to drive collaboration across the global ABC/MBC community.

The Initiative Repository contains information on all initiatives included in the toolkit. It also includes the contact details of initiative owners, and allows users to filter and sort different criteria to find those that are most relevant. One-page summaries of each initiative can be accessed directly from the updated repository. Click below to access the latest repository and consider contacting initiative owners for more information.

We are pleased to announce that submissions have now re-opened for initiatives to be considered for inclusion in the toolkit.

Map

‘count us, know us, join us’ and ‘here & now’ campaigns

Novartis has partnered with organisations around the world to raise awareness of the needs and experiences of people living with advanced breast cancer and to provide disease information to patients and caregivers. One major initiative has been the global "Count Us, Know Us, Join Us" campaign that recognises and supports those living with ABC, as well as their caregivers, supporters, friends, and family members and helps to give them a stronger voice to meet their needs.

The Count Us, Know Us, Join Us survey confirmed that women with ABC feel isolated from the "pink" breast cancer movement that tends to focus on prevention and survivorship, and want to be better understood.

The sister pan-European initiative, "Here & Now" aims to raise awareness of ABC and the realities of living with the disease. Here & Now has uncovered insights into the impact of ABC to understand how barriers to optimal patient care can be overcome in order to improve the level of care and support across Europe.

‘count us, know us, join us’ and ‘here & now’ campaigns

covid-19 and cancer

Coronavirus, COVID-19, and Cancer

Coronavirus, COVID-19, and Cancer

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COVID-19 and Cancer

COVID-19 and Cancer

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COVID-19 Patient Care Information

COVID-19 Patient Care Information

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How to Manage Cancer Care during the COVID-19 Pandemic

How to Manage Cancer Care during the COVID-19 Pandemic

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Additional Resources

Challenges in optimizing care in advanced breast cancer patients: Results of an international survey linked to the ABC1 consensus conference

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Here and Now Survey Results

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International Guidelines for Management of Metastatic Breast Cancer: Can Metastatic Breast Cancer Be Cured?

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International Guidelines for Management of Metastatic Breast Cancer: Combination vs Sequential Single-Agent Chemotherapy

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Metastatic breast cancer patients: The forgotten heroes!

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Metastatic breast cancer Recommendations proposal from the European School of Oncology

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